Discovering Arthritis

By helen7898 Latest Activity May 20, 2011 at 12:16 am Views 6,343 Replies 16 Likes 10

helen7898

I have not yet went to an arthritis specialist, but my primary dr said I don't have
RA but my fingers are curving and getting bumps on them,. Could anyone tell me what kind of arthritis this is. Ra runs in the family, but bloods tests say I don't have it. My fingers hurt all the time. I keep them moving during the day but when I get up in the morning I can't make a fist let alone bend them

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Replies (16 replies)

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  • tharr
    tharr May 28, 2011 at 1:49 am   

    Don't rely on one primary doctor's opinion. I did for over a year and got much worse. Upon switching GP's over a year later on my first visit to my new doctor verified that I did indeed have RA.
    There are 4 tests for RA. The Rheumatoid factors are antibodies that are present in the majority of people with RA. However, the rheumatoid factor can be found in people without RA or with other autoimmune disorders. One of the problems with the RF test is the number of false positives.
    There is also the Anti-CCP (excellent prognostic value), Sed Rate (again, other conditions can influence test results) and C-reactive protein or CRP (physical conditions as well as the patient’s diet or medication can alter a CRP result). As you can see none of the tests are 100% accurate.
    You need to verify that it is indeed RA, if it is find a good rheumatologist and start treatment immediately. The longer you put off treating RA, the more irreversible damage is being done to your joints and body.

  • Hot Brownie
    Hot Brownie May 27, 2011 at 1:49 pm   

    After I was diagnosed and had been getting treatment for RA… I actually had a doctor tell me… "You do not have RA young lady, I don't know what you have, but it's not RA" I don't know if he had the wrong chart or what… but when the doctor (the one I usually saw back then) came in she said he was an idiot and I definitely had RA. I just thought I would mention it because he was a trained medical professional in the field of Special Medicine and he even made a mistake.

  • Lin Bigknife
    Lin Bigknife May 27, 2011 at 11:31 am   

    Please do not quit looking - there are meds now which can PREVENT future damage and you owe it to yourself to see a rhumatologist. Get a referral i fyou need one but try to find a rhumey that is recommended to you by a PATIEINT - you need a good one. IF you don't like the first one, go to a second and again and again until you find someone who is good TO you and good FOR you - you owe this to yourself and your family - DON"T WAIT - do it soon. and then please keep all of us posted on your progress - WE CARE!! Bless you, Lin

  • hobber
    hobber May 26, 2011 at 9:45 am   

    When I first started to notice symptoms my primary doctor told me I definitely did not have arthritis, but had some neuro disease. Finally a neurologist sent me to a rheumatologist who told me I had RA. Later I found out that the tests most primary doctors use aren't thorough enough; the rheumatologist has a much bigger diagnostic arsenal.

  • jayabee52
    jayabee52 May 25, 2011 at 6:21 am   

    My bride "Jem" was Dx'd with RA toward the end of her life. A primary Dr is often not equipped to Dx RA or Lupis (SLE) which she also had. Sometime I think the SLE was masking the RA flares so it took longer for her Rhumetologist to finally Dx the RA.

    It sounds to me like RA, but I am not a MD, (nor do I play one on TV) so go to a Rhumetologist and get it checked out. Even then sometimes the tests are not conclusive. Jem had to take it 3 different times before she got her DX or RA.

  • Cowgirl2aTEE
    Cowgirl2aTEE May 24, 2011 at 7:28 am   

    helen7898
    My mother has crooked fingers and a few months ago I noticed the bumps n curves on my fingers. They don't ache as much since I began taking pain meds for other conditions. I take Celebrex20mg 2x day Morphine Immediate Release 30mg 3x day and pain has left my arms to fingers and weather changes is about only time I still suffer there. RA runs in my family too but I took test and its negative, been diagnosed with Osteoarthritis in arms, hands, feet, but mainly spine hurts the most. i have 2 bulging discs in neck, (chiropractor made those fine, no more pain there) 4 in lower back, CHRONIC PAIN and can't bend over w/out major pain, can't stay in 1 position very long, slept in recliner last 8 yrs which helps keep from awaking to pain so bad wanna curl up n cry, can't climb stairs, can't lift over 3 lbs. I have not went to a specialist but tried a pain dr and he said he was numbing neck when he inserted shots but it hurt so bad I screamed n cried, he asked if should stop n i said no just hurry please!! I have found a lot of info on www.Webmd.com I would suggest you search there. not sure of exact site spelling just search web md and u will find it and real dr.s are on the site so what you read there is TRUE!! Good luck n stay n touch. I will send u friend request. BTW u have come 2 a wonderful family of sufferers here on this site. Sometimes it feels better just 2 talk/type to someone and u can do that here and feel the love in the answers and gifts u get. TTYL!

    Love,
    Tammy

  • Grandma Joyce
    Grandma Joyce June 7, 2011 at 3:46 am   

    I was diagnosed with RA in my early 20's. I am now 66. I agree that some doctors have no idea what they are doing when they test for RA. I have had surgeries on my feet. So many I can't count them, just to be able to keep walking. My foot Dr. says he will not operate any more. My right knee just had a scope operation on it. That Dr. told me, he will need to give me a total knee replacement if it doesn't work. He said my knee joint has a lot of arthritis in it. I have had numerous injections for pain in my back. I also had two back surgeries. This last time I found out my back was broken. I have two plates in it. I could go on and on. I guess you got the picture by now. I couldn't take most arthritis meds because I had two perforated ulcers and lost part of my stomach due to the medication. I therefore have not been able to keep up with the damage RA was doing to my body. I want anyone who thinks they have RA and can take the meds to try to find a doctor to give them to you. You will need a lot of insurance though. Rheumatologists are very expensive. You will be able to stop having the damage I have. I had so many operations now I can't even count them. I was told to have both shoulders replaced. I am waiting to see if my knee gets better first. I am also getting very "chicken" about other surgeries. I feel sorry for any of you who are just finding out you have RA. Be brave and pray a lot. It also helps to stay in touch as Tammy says. Have a good night. Love Joyce

  • Lizziebell60
    Lizziebell60 May 24, 2011 at 7:37 am   

    what is it with "Morphine" you need a good Dr. and do not get hooked on pain killers! inflamation causes pain and Flare ups they need to be addressed!! after a while nothing will help the pain, get a Dr. that will work with you Tammy! I have had RA for several years and I am on Humira and a few other things and Fish oil and Vitamin D and Vitamin E and yes I have learned a lot from this site. Listen to the ones here they will help you!! ask Big Pain about the Fish oil and vitamins ok!!! Your Friend Lizzie

  • memaw
    memaw May 30, 2011 at 9:46 pm   

    Kind of glad I am allergic to that morphine stuff!

  • tracey0929
    tracey0929 May 24, 2011 at 7:12 am   

    I to have just started feeling pain in two of my fingers. Last night I noticed a small bump on each of them. I am 41 and have not yet gone to the doctor but am certainly going to make an appointment very soon. Mine also started with pain in the two fingers. Now I am wondering if my knee pain is also associated to it . Not liking this aging process

  • memaw
    memaw May 30, 2011 at 9:41 pm   

    When I was about 25 I had pain in my pointer and middle finger on my right hand, some swelling too…didn't want to bend. Silly me thought it was probably due to the fact that the store I worked at, I ran the cash register alot and those two fingers are the ones I used. Then it went to wrists and elbows, and one morning when I woke up I was barely able to walk-feet and ankles were horrible. When I went to a Doc, he said I was too young for it, even though there was a big family history. He did a blood test and said…don't eat fatty foods, you should be fine. So here I am, 32 years later, enough titanium in my body to set off metal detectors, and scars on my wrists and toes. Guess I should have given up those french fries like he said! hehehe

  • NewEnglandGuy
    NewEnglandGuy May 20, 2011 at 8:40 am   

    You really can't expect anyone here to tell you what it is,you should get a second opinion.There are over 100 different kinds of arthritis,maybe your blood test didn't show a high RF but it may be classified as some other form of arthritis or what they call "undifferentiated".You need to see a rheumatologist.

  • leelee54
    leelee54 May 26, 2011 at 9:59 am   

    A high RA factor doesn't always mean that you have arthritis either. From experience and from being told by a rheumatologist, my high RA factor was from the fact that I had HepC. The HepC will raise your RA factor numbers.

  • NewEnglandGuy
    NewEnglandGuy May 26, 2011 at 10:55 am   

    True..my wife came down with a bad virus of some sort this past winter.Blood test showed her RF was a bit high and she's never had any kind of arthritis.As a result her joints became very painful something she never experienced.The doc said it was due to the virus and should be temporary.Fortunately she was right,though it lingered on for about a month.

  • helen7898
    helen7898 May 25, 2011 at 3:12 am   

    I am new to this site and I really didn't expect anyone to diagnose my pain. Just wondering if anyone one else had these same syntoms. Glad you're not my dr. Not much of a bedside manner. Thanks for making me feel welcome and at ease to gthis family..

  • NewEnglandGuy
    NewEnglandGuy May 25, 2011 at 5:16 am   

    Sorry,it's just that you asked if anyone could tell you what kind of arthritis you have.I wasn't criticizing,best of luck to you.

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