By Shirlwain Latest Activity May 2, 2011 at 10:18 am Views 5,016 Replies 38 Likes 9


Hi, I am new to this ite, so please bear with me. How do most of you cope with the pain of arthritis? Some days my med's dull the pain, but never goes away, and other days the med's dont seem to make an impact at all. How do you cope with this, or can you give me some tips?

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  • Elizabeth1929
    Elizabeth1929 October 9, 2011 at 2:05 pm   
    Edited October 9, 2011 at 2:29 pm by Elizabeth1929

    Hi my name is Elizabeth, I have been dealing with pain for 20 years now. I have just been terminated from a pain clinic that I was in for 8 years they also handle all my other medical needs, actually it was a pain clinic inside of a reg. office. Anyways the Dr. said I was on too much medicine and he did not feel comfortable giving me the amout of opiates, what a crock!!!! For 8 years I stayed on or about 40 mg of oxycontin twice a day and 4, 10 mg tablets a day for break through pain, on Aug. 3, 2011 I went in to my normal apt. to get my meds. and to met my new Dr. because my old one had graduated and moved on, so the first thing that came out of his mouth was he was going to cut me down on my meds., because he didn't feel comfortable when the amout I was on. So I RAISED, YES I DID , I RAISED MY VOICE AND I TOLD HIM THIS WAS NOT FAIR HE WAS GOING TO JUST PUT ME IN PAIN. He then proceeded to tell me that he was not going to handle my pain management any longer after 8 years in this clinic and with this one exception of blowing up as they put it i was a GOOD patient. He was going to send me to another one and with MEDICADE no one in my town excepts this ins. so I would I have to go about 60 miles one way and how is that possible when I am in that much pain and don't drive. They kept bring up my daughter and saying she could do it, like she doesn't have resposibilites, that is BS because she does and she can't take me there, so this is not a option. SO I SAID " WHY DON'T YOU TAKE OFF WORK AND TAKE ME '' I guess he didn't like that he left the room and about 1 hour later came back with his BOSS and said " WE ARE SENDING YOU SOMEWHERE ELSE WHERE THEY CAN DEAL WITH YOUR PAIN" they lowered my scripts in half and I left. Then a week later I got a certifed letter in the mail and it was a termnation letter that said they were no longer going to handle my pain management and I need to find a new DR. so I did I didn't understand they were terminating all my care. I called and talked to someone in charge and they said since they could not do my pain management that they were not going to do any of my other medical needs. I know really this has nothing to do with that because in that same week or so the same Dr. refused to sign a medical form for me to get help in my home, I told him that I had been falling 9 times in 3 months, also I needed help with showering because of this, I had not had a shower in a month (YUCK) and he would not sign the papers for Hoveround and since my kids left home I can't lift my manual wheelchair that the same clinic signed for me to get it. So I decided to go to someone higher up in another clinic. That is why I got terminated. For all of my care I called it DISCRIMANTION !!!!!!! So I found a new DR that I love and he signed my medical papers I needed to get a shower, and a call button, and a wheelchair. I really do feel that the Dr in the first clinic was using my age against me and this has been a problem for me for many years because I was only 23 years old when I was put on disability. I have been DISCRIMANTED against many times and turned away and the meds have been a BIG PROBLEM I don't know how many times I have been told I don't need to be on that much medicne I AM IN OR SHOULD NOT BE IN THAT MUCH PAIN HOW THE HELL WOULD THEY KNOW HOW MUCH PAIN I AM IN. I have been lying on my couch for 20 years have they been?

  • dapeck
    dapeck October 6, 2011 at 2:20 pm   

    i am 70. have had two lower back surgeries, i hip replacement, i knee replacement and i now have spinal stenosis. i take 500 mg tylenol with 200 mg ibprofen 5 times per day. i also do lower back, hamstring, knee and hip stretches every day, which takes about 26 minutes. i work out with weights, jakes tower, swiss ball exercises 5 days a week in a circuit setting which takes about 30 to 40 minutes. if i did not do this i feel i would be a cripple by now. the most important thing for pain is to move.

  • leelee54
    leelee54 May 26, 2011 at 8:35 am   

    I use Brain Wave Entertainment. It's real easy and there are no pills to take. I go to and download the mp3 for fibromyalgia and pain and listen to them with headphones. BWE's mimic the tones and frequencies your brain naturally produces. You can find more information on how they work on this site.
    I started in May of 2010, listened to the tones for three days, three times a day for 30 minutes. On the third day I realized that my pain was gone as well as the depression, fibro fog and my concentration levels were greatly improved, I also was sleeping all night. This lasted until October of 2010 and I had to do it again for 30 min. That's all it took, one day for 30 min. I haven't had to do them again, yet. Give it a try!! You'll be glad you did. Oh, yea, I was on nine medications, three of which were pain meds for pain, now I take only three. I still take Tramadol (150 mg. per day) but that has been reduced as well. I was taking 250 mg.

  • Shirlwain
    Shirlwain May 29, 2011 at 6:55 am   

    thank you, downloading this is as we speak

  • fldamato
    fldamato May 26, 2011 at 9:07 am   

    Thanks for sharing this. I do Tai Chi and meditate and it helps me too.

  • fldamato
    fldamato May 30, 2011 at 3:48 am   

    Glad you have found Tai Chi too. Where do you do it and where do U live? I live in Charlotte, NC

  • Shirlwain
    Shirlwain May 31, 2011 at 2:11 am   

    I live in the UK

  • Shirlwain
    Shirlwain May 29, 2011 at 6:55 am   


  • renih
    renih May 20, 2011 at 9:01 am   

    I try to stay on top of the pain For the last 4 months or so I have been on a pain patch and then have some hydrocodoane for break through pain. I also have some lidocaine patches for particular spot that hurts so bad I ant sleep. Most of these meds I get from my primary physician but I see many times if it is not an older seasoned doc they will refer u to pain managment doc. I also use some voltarean cream it helps during the daytime for a particular spot. It has taken me many hours of research and years of pain to figure out what is working for me. I also take 1 cc a week injectible MTX and I go in 1 time a month for Actemra IV therapy. Even with all these meds I am still in a certain level of pain that I have to just mentally push past. It takes time and practice to get past the pain and keep moving! Also I pick one thing every day that I do for cleanong etc around the house and I pick 1 small ativity a day to do in the enjoyment things like watch a movie, go out in the garden, go for a ride in the car, read a book. Then everything that happens that day is alright as I got a couple pf things done that I had plans for and I only did those things so I am not worn out and hurting even more than usually cause I didnt over do!
    You have to find a path (system) that works for you and it takes time and patience to get there and then even when u think u have the right combination sometimes I have to change it or tweek it as things, seasons, my body, my mental attitude change.

  • Shirlwain
    Shirlwain May 22, 2011 at 4:24 am   

    Hi Renih, thank you. Reading your message, gives me some hope, particularly when you stick to one goal a day, sometimes I do go overboard and then in worse pain. Sometimes I think if I do over do things, I feel normal for one day and can do things, but then pay for it later. Will have to take your goals on board and set myself small tasks to start. My Dr is sending me to a neurologist as he thinks I may have fibromyalgia on top of the OA but none of them have offered me pain patches, am sure we must do them here in England, so may ask the question when I am back at the Dr's next week. Thanks again.

  • Pasha1214
    Pasha1214 May 20, 2011 at 8:40 am   

    I smoetimes take celebrex right nowIam taking vicoden. Some days it helps and som ays to doesn,t.

  • Belaine
    Belaine May 15, 2011 at 4:42 pm   

    I keep a list of things that help, And enlist people around me for when I'm too distraught to think straight. Taking my meds is important. So is activity—as much as I can stand w/o pain. Then there are distractions— fav books, movies, comedy. Anything to get my mind off the pain!

  • Shirlwain
    Shirlwain May 16, 2011 at 2:11 am   

    Sounds like a good idea Belaine, I like to read but am trying to write a childrens book as well to keep my mind active. I am back at the hospital in August for my arthritis, and hopefully they will consider doing my hip replacement as I dont sleep much at all.

  • nanalamb
    nanalamb May 19, 2011 at 5:43 pm   

    I had my hip rplaced last October, what a God send!!!

  • Shirlwain
    Shirlwain May 20, 2011 at 2:08 am   

    am glad its worked okay for you

  • bigcocoapuff
    bigcocoapuff May 14, 2011 at 10:08 pm   

    I sure do wish someone would listen to me. I NEED SOME RELIEF!!!! how do you go about getting medication that you know works best for you from drs? I need anxiety meds depression meds and pain meds, occasionally an ambien. Although when my body aches get in my muscles I cant sllep even with that!!!

  • Lizziebell60
    Lizziebell60 July 30, 2011 at 12:58 am   

    If you are in a Flare up! Go on Prednisone for a few days, then ask your Dr. to write you a presciption for Restoril at a higher dosage for sleep. Flexeril is a good mucsle reliever also. just trial and error we all go through it! I wish you so much Luck lizzie

  • Shirlwain
    Shirlwain May 15, 2011 at 1:14 pm   

    Hi I am still trying toget meds that work for me - seems to be trial and error. I cant sleep either. I hope you get meds that will work for you.

  • Kcfan1
    Kcfan1 July 30, 2011 at 11:34 am   

    I have the same problem. They originally put me on Naprosyn. It took the edge off at first. Then did absolutely nothing. My pain is mostly in my shoulders and knees. Now they are giving me Celebrex. Sure hope it does something.

    ZOWLUCY May 7, 2011 at 2:43 pm   

    I know I answered you before on this topic put being as I was just seen by my pain management doc and I will be getting a tens unit hear within the next week also the dr also gave me a numbing gel which does help with the nerve pain not bone but nerve pain I have used 3 times so far and OMG it actually worked its the liedocaine gel sorry not a good speller but you get the idea Im sure I am still using the patch as well flector patch was also give trigger point injections 7 total on my back aslo tylenol 3 as well for break thu pain at night For the first time in 6 months I have actually had a well needed healing sleep Usually Im up and down 6-7 times a night because my backbone fills like its coming thu my chest.
    ** And well it true that some meds dont touch the pain but just dont make you care there are some out that do the job there suppose to '
    I cant take Vicodin Im a space cadet on that one> Even my husband will say please dont give her that she dont make sense and I dont

    I had to share this because I hate i mean really HATE taking pills I know I have to but If they dont work well or dont make me feel right or if the side effects leave that nasty disgusting metallic taste in my mouth. YES Yippy Skippy Im going to say something quick. Guess I'm trying to say is and this is ONLY MY OPINION

    If your doctor doesnt hear you or listen to you and he or she thinks that because they have a phd or md od whatever then you need to say

    Hey please listen to me and hear what IM saying, It has to be a mutual agreement of how your going to treat you not just what the doctor says.

    You do have a right to say Dr I understand that this is what you prescribed but I dont feel that its working or I dont like the way this makes me feel

    I think I have 3 of the best doctors looking out for me I have my Primary and then the Specialist for the RA and then I have the Pain Management doctor

    I just wanted to share my recent visits with all three of them and it was much more positive My primary he laughs and tells me "Thats my girl show me some of that fight I have not seen in a while"

  • watrmdn
    watrmdn May 6, 2011 at 3:53 pm   
    Edited May 6, 2011 at 3:53 pm by watrmdn

    it's me again shirl :-). My sister has Lupus and she always says "the pain meds don't get the pain they just make it so you don't "f***n" care!". I think of that on a painful day! Doesn't solve the problem just makes me smerk!

    ZOWLUCY May 3, 2011 at 5:12 pm   

    Tharr you 've hit the nail on the head on this one I DO my normal meds most of the time My pain is everyday and mine isnt low scale mine is middle to high most days On the days I cant deal with it I go for the tyenol 3 or the Vicodin I usually use heat Ice makes it worse On the middle of the scale days I use the tyenol arthritis also Ive been dealing with the RA and Osteo since April 2005
    Most days I now where the patch flexor 12 on 12off this helps I work with a pain management doctor as well as a specialist plus my primary so I got 3 looking out for me and they all work well together. On the really bad days i stay home snuggle in under the covers and rest
    It depends on the person pain tolerance and what the doctor has prescribed

  • Shirlwain
    Shirlwain May 5, 2011 at 2:26 am   

    Hi Zowlucy, I tried to get vicodin but my GP wont give them to me - I have never heard of a patch flexor, but all ideas are welcome - think I need to be firmer with my doctor.

    ZOWLUCY May 6, 2011 at 3:56 pm   

    sometimes being firmer will work but ya gotta remember that some thing they have all the answers so with that being said the Last time I lost patience with the doctor I couldnt work with him anymore and I left the practice because of it I cant tell you what to do But if it were me I would start out with I have something on mind and I need you to hear what IM saying maybe it'll work maybenot

  • tharr
    tharr May 3, 2011 at 1:06 pm   

    I live with pain every single day. Most days it is low scale pain and I can do most anything with in reason. On the days where my RA is more grumpy, I have found that Tyenol Arthritis works best for me, over 8+ years of dealing with this I have tried just about everything. Everyone responds differently though, you will just need to find the right OTC med to help a little on those bad days. Also on my bad pain days, I don't fight it anymore, just kick back and let your body rest.

  • Shirlwain
    Shirlwain May 5, 2011 at 2:22 am   

    Hi Tharr, thanks for your comments, this website is such a godsend as some of the med's members have been telling me I have never heard of. I have 5 doctors in our town practice, my own Dr is very good but its a fight to get to see him, sometimes I have to book 2 months in advance and some of the other doctors just seem to dismiss the pain. You would think considering I have had 17 op's in 7 years they can see that there is a problem. However, I will see what they say this time and if not will give Tyenol a go. Thanks again.

  • Musicteacher
    Musicteacher May 2, 2011 at 9:06 pm   

    Every day is different. One day you may feel great, and the next you may be in a lot of pain. Physical therapy really helps. I find it releases tension and is a great stress reliever. Also, try to keep a journal of what you eat and your pain that day. I find that certain foods trigger flare ups. Just take each day one at a time. It took me 6 years to find the right meds and even now I still have bad days. It's all trial and error but new medications come out all the time so you're bound to find what works for you. Hang in there ! :)

  • Shirlwain
    Shirlwain May 3, 2011 at 12:53 pm   

    Thanks for the update, will start a journal and see how it goes.

  • Lizziebell60
    Lizziebell60 May 2, 2011 at 2:48 pm   

    Hi, we all have pain some days are better than others and some of the meds will help just takes time finding the right ones for each person, I use Humira and mobic and I still have bad days but have some good ones also. Hang in there and it takes time to figure out which meds are right for each person. If you have a whirl pool it is great and get in it twice a day it works when I have big flares. But the pain will get to a point you can deal with it. It is a lot to do with having as little stress in your life as possible and yes that is a hard one to cope with this day and time, Hope I helped or said a word that might brighten your day. Lizzie

  • Shirlwain
    Shirlwain May 3, 2011 at 12:52 pm   

    Thank you may have to see my dr again but will certainly take your comments on board.

  • kittenpurr1
    kittenpurr1 May 2, 2011 at 3:01 pm   

    Good answer. I agree with you. Stress makes things worse, try to stay as stress free, as you can.

  • Shirlwain
    Shirlwain May 3, 2011 at 12:50 pm   

    Thank you for yor comments.

  • Paul FL
    Paul FL May 5, 2011 at 11:48 pm   

    Odd as I have been given pain meds for years, but then again each of us is different… Loritab works for most of my pain however it does not take the pain away but makes it much more bearable. Of course most people would die just from the amount of stuff I take, inhale and/or inject. Yes, all Dr ordered and I would much rather go out to dinner then spend it on the medications but life as other jokes to play on us.

    Tharr, very impress that you can do it with OTC.

  • Paul FL
    Paul FL May 10, 2011 at 6:56 pm   

    Pain tolerance, went in treatment today for my feet, and thought I was going to get shot of cortisone in my foot or both feet. Found out I had broken a bone in my right foot, so shots today, thus no pain relief today. We will see what the DR says next visit in two weeks. Yes we deal with pain every day but we must also be aware of issues from other things not related to RA like a broker bone, LOL.

  • Shirlwain
    Shirlwain May 13, 2011 at 2:26 am   

    am sorry Paul to here you have a broken bone in your foot. Yes do realise there is other pains not always related to conditions we may have, this I understand. Like you said in a previous message you have lots of medications to take, know that feeling lol I have had to get to different tubs, one for day and one for night, think if someone picked me up and shook me I would rattle with all the medications lol.

  • Paul FL
    Paul FL May 13, 2011 at 8:00 am   

    It is really strange how we turned in to our parents or old people. I am not ready to be old.

  • Shirlwain
    Shirlwain May 15, 2011 at 1:12 pm   

    Neither do I want to be old brfore my time.

  • Paul FL
    Paul FL May 15, 2011 at 2:25 pm   

    But as my wife has pointed out I have been on medication most of my life, just not as much as I am now. This will start my new post… " Did you have health issues as a child or when did you start having health issues?"

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